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October members’ meeting

Over 60 members and friends attended the October members’ meeting on the evening of Thursday 22nd October.

The meeting began with a quick review of current news from Chairman Donald Cairnduff, including the very good work being done on the Helpdesk in Outpatients; the success of two NI liver recipients in the recent World Transplant Games in Argentina, Catherine Annesley and Philip Cairnduff; and the brilliant promotion of organ donation by someone who would have been at these games had she been well enough, Lucia Quinney-Mee.

If you haven’t seen Lucia’s Live Loudly Donate Proudly Facebook page, including a video made by Lucia’s family at her bedside in Birmingham which has had over 16,000 views, please visit it.

Margaret McAllister presents a cheque for £1,100 from Belvoir Players.

Margaret McAllister presents a cheque for £1,100 from Belvoir Players.

 

A cheque for £1,100 was then presented by Margaret McAllister of Belvoir Players, proceeds from their production of ‘Allo ‘Allo in September.

 

 

Chairman Donald Cairnduff with guest speakers: l-r Sister Betty Boyd, Staff Nurse Debbie Walker, Deputy Sister Geraldine Casey and Sister Gillian Boyd.

Chairman Donald Cairnduff with guest speakers: l-r Sister Betty Boyd, Staff Nurse Debbie Walker, Deputy Sister Geraldine Casey and Sister Gillian Boyd.

The main business of the evening was a series of fascinating presentations on the life and work of two areas of the hospital.   Staff Nurse Debbie Walker traced the history of care for outpatients in the RVH and Sister Gillian Boyd outlined how nursing staff were currently working to very high standards of care in an age when the number of people needing the service was increasing.  Sister Betty Boyd and Deputy Sister Geraldine Casey gave a detailed overview of the Programmed Treatment Unit, which among other things has succeeded in preparing patients for transplant assessment in one day, when previously this had taken 11 days.

October members’ meeting2020-08-04T11:17:47+01:00

Saintfield Ceilidh

Saintfield Ceilidh

Donald Cairnduff, Philip Cairnduff, with the Alastair Scott Ceilidh Band. Front is Emma Welch, promoting Organ Donation

Donald Cairnduff, Philip Cairnduff, with the Alastair Scott Ceilidh Band. Front is Emma Welch, promoting Organ Donation

Thanks to the organisers of the HARFEST Music Festival in Saintfield for choosing the RVH Liver Support Group as beneficiaries of their fundraising ceilidh in Second Saintfield Presbyterian Church hall on Saturday 24th October.

As well as raising funds for the Group and awareness of its work, the evening celebrated the achievements of Northern Ireland athletes in the recent World Transplant games in Argentina.  Kathryn Glover and Philip Cairnduff represented these athletes and sharedstories of how the gift of life has given them the energy and motivation they need to succeed as transplant athletes at the very highest level.

Claire McAteer and Julie Gowdy at the Ceilidh

Claire McAteer and Julie Gowdy at the Ceilidh

 

A very wide range of ages, rhythmical awareness and physical co-ordination took to the floor.  Music was provided by the Alastair Scott Ceilidh band.  It was a hugely enjoyable evening which brought in £360 for the work of the Group.

Saintfield Ceilidh2020-08-04T11:17:47+01:00

CLDF activity weekend – plan and information

CLDF ACTIVITY WEEKEND      

A quick plan for the weekend.

Saturday 14th November

Please arrive by 2.00 pm at Todd’s Leap with fully tummies and ready for a weekend of fun.  

2.00 – 5.15 pm at Todd’s Leap Activity Centre

The afternoon will comprise of a wide range of exciting family activities, such as zip lining, archery or junior paintball. (A games room will also be available during the afternoon for children of younger ages – as subject to parent supervision).

5.30 pm – Families will be shown to their accommodation

6.30 pm – Evening Meal

7.30 pm – Free time for families to relax and chat with other families in the games room or bar area. There will also be a chance for families to get involved in games organised by the CLDF Team.

Sunday 25th October

8.30 am – Breakfast

10.00 am – 12.30 pm – Families can get involved in a range of activities such as a bungee trampoline, to be followed by an off-road treasure hunt.

12.30 pm – Lunch

1.20 pm – Wrap-up of weekend and a goodbye from the CLDF Team, as we have a flight back. (Families are welcome to remain on-site and use the facilities/ participate in activities once the CLDF Team have left – as subject to additional charges).

4.00 pm – Check-out from accommodation for all families.

 

There are a few things to note before your weekend away with us at Todd’s Leap 

  • For families with young children, please note that there are only 2 highchairs to hire onsite (and thus may not be available on the weekend of our stay) and unfortunately Todd’s Leap do not provide cots – Therefore we advise families to bring their own.
  • As the first meal provided will not be until the evening meal at 6.30 pm, and families will be participating in activities prior to this, we advise that families eat lunch prior to meeting us at Todd’s Leap at 2.00 pm.
  • It is advisable to wear outdoor clothing suitable for the time of year and old trainers or boots, along with a torch. You may wish to bring a change of footwear and old clothes with you.
  • We have been advised by Todd’s Leap that there is not a cash machine on site and the nearest is located 2 miles away at Ballygawley. However, card payments can be made onsite.
  • Linen is provided by Todd’s Leap; however we have been advised that families must bring their own towels for their stay.
  • With regards to overnight accommodation, please note that at this stage we are still allocating rooms and so will be unable to confirm types of rooms until closer to the event. As accommodation is limited and varies in numbers per cabin, families may be required to have more than one room or share with another family – please contact us if you have any concerns.
  • As noted, we must remind parents that children will be their responsibility for the duration of the weekend.
  • Activities may be subject to change at the last minute and please note that some activities we have organised have an age restriction.

 Should you need to contact the CLDF staff on the weekend itself, please call the events team on 07528 063 636.

 

 

 

 

 

 

 

 

 

 

 

 

CLDF activity weekend – plan and information2020-08-04T11:17:47+01:00

Live Loudly Donate Proudly

I want you all to know that Lucia Quinney-Mee and a small group from Ballycastle have launched a Facebook page today to coincide with the start of Transplant Week. They will use the page to promote Organ Donation.

Please visit and ‘Like’ the page to support Lucia and her friends.

Live Loudly Donate Proudly2019-03-14T21:34:15+00:00

O’Hara cheque presentation

Kay Duffy receives the cheque on behalf of the support group

Kay Duffy receives the cheque on behalf of the support group

 

Kay Duffy recently received a cheque from husband Tommy and the sisters of the late Arlene O’Hara. The money was raised by the family for the RVH Liver Support Group.

O’Hara cheque presentation2020-08-04T11:17:47+01:00

Tullylagan fundraiser

Tullylagan Fundraising

The Tullylagan Vintage Owners’ Association continues to work hard raising funds for the RVH Liver Support Group, their chosen charity of the year.

A street collection on the day of their tractor Push in Cookstown of Friday 5th June brought in a remarkable £ 2,600.  Thanks to all who helped with the collection, especially those who travelled down.

On Saturday 13th June the Association held its annual family fun day at Loughry College.  The day was a great success, with musical groups, Irish dancing, animal displays, vintage cars and a parade of vintage and classic tractors.  This event will have generated a significant sum for the Group and again we are indebted to the Association for their interest in our work and their efforts on our behalf.

L to R Donald Cairnduff, Wendy Howe, Kay Duffy and Jennifer Cairnduff at the fundraiser.

L to R Donald Cairnduff, Wendy Howe, Kay Duffy and Jennifer Cairnduff.

 

 

Kay Duffy, Jennifer Cairnduff, Donald Cairnduff and Wendy Howe helped with catering throughout the day and took the opportunity to wear  the RVH Liver Support Group’s new polo shirts, which carry a rebranded logo indicating that we offer support to all with liver disease and their families and carers across Northern Ireland.

 

 

Tullylagan fundraiser2020-08-04T11:17:48+01:00

Members’ social event

Members and guests had a very enjoyable day at the Seagoe hotel on Sunday afternoon, 31 May. It is a great annual opportunity for members to renew acquaintances and very meaningful conversations take place between those who have came through tough times, or have helped others close to them through tough times.

Here are some of the photos taken on the day of the event.

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Joan and John Gowdy present a cheque to chairman Donald Cairnduff

Joan and John Gowdy present a cheque to chairman Donald Cairnduff on behalf of Patrick and Joanne Moore.

Members’ social event2020-08-04T11:17:48+01:00

Frew Business Machines Donation

Additional support for rebranding and help desk

L to R Robin Frew, Gloria Fletcher, Daniel Fletcher, Kay Duffy, Jean Frew and Jack Frew

L to R Robin Frew, Gloria Fletcher, Daniel Fletcher, Kay Duffy, Jean Frew and Jack Frew

Following on from the generosity of Killowen Contacts  in supplying our help desk desk in Outpatients to support our work, we are happy to report that Frew Business Machines have now donated our leaflet holders AND gave us a very generous cash donation of £1,000.

It is seldom that I single out any committee members but the whole idea of a help desk in Outpatients was the brainchild of our founder Kay Duffy. Kay has worked tirelessly on this and has delivered it all with no cost to the group.

We wish to acknowledge this never ending level of support that the RVH Liver Support Group is so lucky to receive from so many people.

Founder Kay Duffy receives the cheque from Gloria and Daniel Fletcher

Founder Kay Duffy receives the cheque from Gloria and Daniel Fletcher

Frew Business Machines Donation2020-08-04T11:17:48+01:00

Platform Event at Stormont

The All Party Group on Organ Donation in the Stormont Assembly works to keep MLAs informed of  developments in Organ Donation as they affect people within Northern Ireland.  Chaired by Mrs. Jo-Anne Dobson, MLA for Upper Bann, it meets roughly three times per year and has heard from representatives of a number of charities working to promote organ donation, including the RVH Liver Support Group in November 2014.

The All Party Group hosted a Platform Event at Stormont in the early afternoon of April 20th.  The purpose of the event was to better inform MLAs of the work of the various charities and the experiences of transplant patients and their carers.  Mrs. Dobson and her Vice-Chair on the All Party Group Mr. Pat Ramsey formally opened proceedings at 12noon.  After that it was up to representatives of the charities to get talking to those MLAs who dropped by.

Representatives from the RVH Liver Support Representatives from our Support Group Group with Mitchel McLaughlin, Speaker of the NI Assembly

Representatives from our Support Group with Mitchel McLaughlin, Speaker of the NI Assembly

The RVH Liver Support Group was represented by five of its members – Donald Cairnduff, Gordon Cave, Eileen Hearst, Gareth Hunter and Sharon Millen.  During the two hours at Stormont we were able to share personal stories, to outline the impact on patients of travelling to England for transplant surgery and to showcase recent developments in our work  – the Helpdesk in Outpatients; plans for outreach meetings in different areas of Northern Ireland.

We had the chance to speak at some length to the following MLAs: Mr. Steven Agnew; Mr. Sammy Douglas; Mr. Mark Durkan (Minister for the Environment); Dr. Alasdair McDonnell; Mr. Michael McGimpsey; Mr. Mitchel McLaughlin (Speaker of the Northern Ireland Assembly) and Mr. Pat Ramsey.

The group members with Joanne Dobson and Pat Ramsey

The group members with Joanne Dobson and Pat Ramsey, Chair and Vice-chair of the All Party Group

 

It was a most rewarding day.  We left sensing that we had done a good deal to make our work better known at the heart of local government.  Sincere thanks for our invitation go to all on the APG, particularly to Mrs. Dobson and Mr. Ramsey.

Platform Event at Stormont2020-08-04T11:17:48+01:00
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