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Love Your Liver – a first for Northern Ireland

January is Love Your Liver month on the other side of the Irish Sea. In January of this year the British Liver Trust’s travelling pop-up clinic screened 800 people in 8 different locations in Great Britain. 21% of these, following a fibroscan, were referred to their GPs. 

It has been a couple of years now since Gordon Cave first suggested that we try to bring the roadshow to Northern Ireland.  From then on he has worked steadily to keep us focused on making this happen.  Which it did – on Tuesday of last week.   

On 20th May the British Liver Trust ran their first Love Your Liver roadshow in Northern Ireland at CastleCourt Shopping Centre.  A screening area where members of the public could answer an online questionnaire was set up on the ground floor close to the Royal Avenue entrance.  The fibroscanning was done in an empty retail unit on the second floor.  Here those referred had an opportunity to talk to one of three consultants from the RVH who were present at different times of the day.

Members of the RVH Liver Support Group, alongside friends and family, acted as volunteers, handing out flyers, explaining the purpose of the road show to passers-by and chatting to people in the queues for screening and fibroscanning.  We were delighted that that Dr. Paul Darragh of the British Medical Association, Northern Ireland dropped by in the afternoon and that Health Minister Mr. Edwin Poots M.L.A. visited in the morning.  Both men took a very keen interest in the raodshow, chatting to a wide range of medical professionals, volunteers and members of the public.  The Minister was also given a clean bill of health after he very willingly sat through the screening process.

At the end of the day, 112 people had been screened, 60 had been fibroscanned and 37 had been referred for liver function tests or further action.  After 16 years as a charity working mainly in support of those dealing with liver disease, it was a privilege for the RVH Liver Support group to be working on a project aimed at preventing others from ever having to do so. 

We are indebted to many people, without whom it would not have been such a successful health promotion day:

·      –  to Andrew Langford, CEO of the British Liver Trust, for his direction on the day and his invaluable contribution  to all the pre-planning;

·      –   to Carol Hazell and Sandra Cooper-Keen of the British Liver Trust for conducting the screening so skilfully and so sensitively;

·       –   to Carolyn Adgey, RVH registrar, who did all the fibroscanning;

·     –  to Drs. McDougall, Cadden and Cash for giving of their time to speak discreetly to members of the public who had been fibroscanned;

·       –   to Binder Tohani and the management of CastleCourt for allowing us to stage the event and for calmly directing us through all the administration;

·       –    to Dave Pettard for photographs;

·       –   to Vincent Kearney for making sure everything was delivered and returned on time;

·       –   and to RVH LSG volunteers for their sensitive and interested engagement with everyone they dealt with..

All bar one of these volunteers knows about the trauma of liver disease, either as a patient or as a carer.  While we will never know the full impact of the Love Your Liver Campaign on the lives of those who visited the Belfast pop-up clinic, if only one person is spared what these volunteers and their families have gone through, the day will have been more than worthwhile.   

**** See thanks and photos in ‘From The Chairman’ section of this website ****

 

 

 

 

 

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Love Your Liver – a first for Northern Ireland2020-08-04T11:17:48+01:00

2014 AGM

The 16th AGM of the RVH Liver Support Group was held in the Samuel Irwin Lecture Theatre on Thursday 10th April.

Dr Roger McCorry addresses the meeting

Dr Roger McCorry addresses the meeting

Guest speaker for the evening was Dr. Roger McCorry, recently appointed consultant hepatologist at the RVH.Members, guests and friends met and chatted over light refreshments before the meeting which got underway at 7.30 p.m.  Initial business was the adoption of the minutes of the AGM for 2013 and of the Treasurer’s Report for 2103-14.

In his Chairman’s report, Donald Cairnduff reflected on a satisfying year which included:

·                a successful outreach event for children and parents at the Odyssey in September;

·     a successful outreach event for adults at the Seagoe Hotel in November,

·         two challenging and informative members’ meetings in October and February;

·         an outlay of £4, 800 on patient care;

·         an outlay of £17, 712 on hospital equipment

·          and continuous steady and sensitive work on patient care, which is by far the most important facet of the group’s work. 

He paid tribute to the many members and friends of the group whose efforts had raised £19, 325 for its work during the year.  He also offered his sympathies to all who had lost loved ones, including the friends and families of two recent committee members, Carina Matthews and Siobhan Gough.

The full report can be read by visiting the From the Chairman page on the website.

Dr. McDougall took charge of the meeting while the committee stood down.  The Committee for 2014-15 was then voted in: Gordon Cave (President); Donald Cairnduff (Chair); Kay Duffy (Founder); Sharon Millen (Vice Chair); Eileen Hearst (Secretary); Tom McCready (Treasurer); Jennifer Cairnduff: Seamus Cunningham; Rachel Quinney-Mee and Anya Toner.

Committee members Anya Toner, Sharon Millen and Donald Cairnduff (Chairman)

Committee members Anya Toner, Sharon Millen and Donald Cairnduff (Chairman)

The meeting concluded with a fascinating presentation by Dr. Roger McCorry. After summarising his career to date, Roger discussed ‘operational tolerance’, where the liver graft keeps functioning  properly and the recipient’s immune system stays strong despite the absence of immune-suppressive drugs.  Current research, while recognising the challenges and risks of weaning patients off immune-suppression, estimates that operational tolerance may soon be possible in up to 40% of selected cases.  Meanwhile, stem cell therapy offers the potential of transforming liver fibrosis into a healthy functioning liver.   While never downplaying the difficulties, Roger’s presentation offered a vision of a future when life might be easier for many transplant recipients.  The lively question and answer session that followed showed that it had certainly caught the imagination of his audience.

L to R Sandra Hamilton, Ann McKee, Donald and Carol watson.

L to R Sandra Hamilton, Ann McKee, Donald and Carol Watson. The three ladies are representing the Joe Watson Foundation.

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2014 AGM2020-08-04T11:17:48+01:00

Successful Love Your Liver roadshow – Thank You

I am writing to pass on my sincere thanks to  everyone who helped out at CastleCourt on Tuesday.

I felt it was a successful day and was very pleased with the response from members of the public.

The professionals – BLT staff, consultants, the registrar who did the fibroscanning – worked very hard but their professional interaction with individuals was helped enormously by the enthusiastic and proactive approach of everyone who volunteered.

Your contributions on Tuesday went well beyond standing, smiling and handing out flyers.  There  was a friendly and positive engagement with everyone who came our way and a willingness to see gaps that needed to be filled and to take on necessary tasks without waiting for someone to ask you that added significantly to the success of the whole event.

I am waiting for final figures from the British Liver Trust  of numbers who were screened and numbers who were fibroscanned.  These will appear on the website with a full account of the event when I have them.

We will, of course, never know the final outcomes or be able to measure the success of the day in terms of how individual lives were affected.   Suffice to say that if one  person , as a result of his/her being at CastleCourt on Tuesday, can avoid the distress that you all know as patients or as carers, all your work will have been worthwhile.

Founder Kay Duffy with Gordon who was instrumental in bringing LYL to Belfast

Founder Kay Duffy with Gordon who was instrumental in bringing LYL to Belfast

Donald, Minister Poots, Gordon, Dr McDougall and Andrew Langford

Donald, Minister Poots, Gordon, Dr McDougall and Andrew Langford

Health Minister Edwin Poots with Donald Cairnduff, Gordon Cave and the CEO of the British Liver Trust Andrew Langford

Health Minister Edwin Poots with Donald Cairnduff, Gordon Cave and the CEO of the British Liver Trust Andrew Langford

 

Seamus Cunningham, Kay Duffy, Gordon and Andrew Langford

Seamus Cunningham, Kay Duffy, Gordon and Andrew Langford

Vice chair Sharon Millen promoting the event

Vice chair Sharon Millen promoting the event

 

 

 

Dr McDougall and Carolyn who carried out the scans

Dr McDougall and Carolyn Adgey (Registrar) who carried out the scans

 

 

Volunteers Ivan Johnston and Colin Kirkpatrick

Volunteers Ivan Johnston and Colin Kirkpatrick

 

Successful Love Your Liver roadshow – Thank You2020-08-04T11:17:48+01:00

Money from the Mountains

Cheque presentation from the Charlie Beverland Foundation

Charlie Beverland was a well known local cricketer and rugby player and, once his playing days were over, for many years an Ulster Branch Rugby referee.  He sadly passed away in 2009 after a long struggle with liver cancer.  The Charlie Beverland Foundation was set up in his memory.

On the morning of 5th May, Belfast Marathon participants representing the Charlie Beverland Foundation met at La Mon Hotel in Castlereagh, ready for the tough challenges ahead and the prospect of raising significant funds for their chosen charities.

Sharon Millen receives a cheque from the Charlie Beverland Foundation

Sharon Millen receives a cheque from the Charlie Beverland Foundation

Before they left, they were joined by RVH Liver Support Group Vice-Chair Sharon Millen, who was looking forward to an altogether less strenuous day.  Sharon was proud on behalf of the Group to receive a cheque from the Foundation for £5,753.  This money was raised through a cycling event in the French Alps undertaken in July 2013 by friends of the Foundation, including ex-Irish rugby internationals Paddy Johns and Dennis McBride and ex-Irish Hockey internationals Jimmy Kirkwood and Billy McConnell.  They completed L’Etape de Tour, which is one of the more gruelling stages of the world’s premier cycle race, La Tour de France.

The RVH Liver Support Group is very grateful to the friends of the Foundation who helped raise this money and to Charlie’s daughter Megan who co-ordinated the fund raising and set up the cheque presentation on May Day morning.

As with all donations to the group, the money will be used judiciously in support of all who are dealing with liver disease – and their families and carers – throughout Northern Ireland. 

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Money from the Mountains2020-08-04T11:17:48+01:00

Walking the wall – in honour of real super heroes

At just after 3 p.m. yesterday, people in Belfast’s Great Victoria Street were stunned to see Banana Woman appear on the roof of the Europa Hotel.  She smiled and waved before abseiling down the wall.

She was the last in a long line of superheroes to make this descent.  Various Caped Crusaders and at least three Spidermen had preceded her – as well as a few ordinary members of the public whose inelegant progress down the wall didn’t have quite the same impact with spectators as Banana Woman’s.

Sharon and Donald representing RVH Liver Support Group

Sharon and Donald representing RVH Liver Support Group

In real life Banana Woman is RVH Liver Support Group Vice-Chair Sharon Millen.  Alongside Chairman Donald Cairnduff, she had been roped into the Nothern Ireland Transplant Forum’s charity abseil, part of their year-long  ‘9 GOALS’ project.  Others abseilers included representatives of donor families, transplant recipients and their friends, as well as medical professionals.

The purpose of the day was threefold – to raise money for the Denise Carter Foundation, which funds projects in aid of organ donation;  to celebrate the new life that transplants deliver; and to honour real and generally unnoticed superheroes – the families who agree to the donations that restore life to very ill people.

Back on firm ground, Sharon and Donald were proud to receive medals from Leah Carter.   Leah’s mother Denise passed away shortly after giving birth to her. Her dad Steve set up the Foundation in Denise’s memory after her donated organs had saved or transformed five people’s lives.

Sharon Mileen and Donald Cairnduff receive their abseiling medals from a masked Leah Carter

Sharon Mileen and Donald Cairnduff receive their abseiling medals from a masked Leah Carter.

It was a privilege for both of them to represent the RVH Liver Support Group, many of whose members are transplant recipients, at such a memorable and public celebration of the gift of life.

 

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Walking the wall – in honour of real super heroes2020-08-04T11:17:48+01:00

Resignation from BLT Board

In October 2011 we had great pleasure announcing the appointment of our President Gordon Cave as a Director on the Board of Trustees of the British Liver Trust. This was a very great honour for Gordon personally and for the RVH Liver Support Group because it was his work within the group that earned him the respect to be chosen for this important role, and indeed for Northern Ireland to be represented at such a high level within a national organisation. Unfortunately, due to recent ill health and the travelling involved to meetings in London Gordon decided to resign from the Board in January this year.

During his time as a Trustee he contributed significantly to the work of the British Liver Trust particularly as a patient advocate where his passion and concern for the plight of those suffering from liver disease and their carers ensured that the patient voice was always heard at Board Meetings.

His most significant achievement was lobbying strongly to have Belfast included in the BLT Love Your Liver Campaign Programme and as a result the Road Show and Pop Up Clinic will be visiting Northern Ireland for the very first time and set up in the Castle Court Shopping Centre on Tuesday 20 May 2014

We are delighted that Gordon will be continuing his work with the RVHLSG.

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Chairman’s report 2014 AGM

Ladies and gentlemen,

Good evening to you all.  You are very welcome to this the 16th AGM of the RVH Liver Support Group..     

It is a pleasure to welcome Dr. Roger McCorry as our guest speaker this evening. I am very much looking forward to what he has to say later in the meeting about current developments in the field of liver transplantation.

I wish first of all to pay tribute to all the hospital staff in the R.V.H. and to thank them for their dedication and professionalism  – to the four consultants who, as in every other year, helped us to plan the year’s work at a strategy meeting on 9th May last year; to Sister Moffett, Fred McDermott and the ward staff of 6D;  to Tracy Close and her staff in the Children’s Hospital; to Betty Boyd and her staff in the Programmed Treatment Unit; to all who work in Outpatients and to all who work in any area of hospital  administration that affects our members. We are proud of the links we have forged with them and are grateful for their support and advice in every area of our work.  I would offer on behalf of all present congratulations and best wishes to Dr. McDougall in his new role as Clinical Director of Medicine.

I also wish to pay tribute to the hard work and dedication of the committee, all of whom are keenly committed to the objectives of the group and who work hard and effectively within their own areas of responsibility.  This all makes my role as chair much easier.  I am continually humbled by the fact that the work goes on steadily at times when some of them may be struggling with ill health themselves or with the ill health of those for whom they care.  One of the most satisfying outcomes this year was the return of Kay Duffy to full involvement in adult patient care.  The lowest moment for us all as a committee was the passing of Siobhan Gough on 10th March.  Siobhan had only served on the committee since April 2013 and while chronic ill health ensured that she could never become fully involved with our work, she impressed us all with her resilience and good humour in the face of serious illness.  Attending her funeral in March was all the more poignant for knowing that we had attended the funeral of Carina Matthews some five months previously. Siobhan had replaced Carina on the committee after last year’s AGM.

We lost several other members during the course of the year and my condolences and best wishes go out to their families and loved ones.  The sadness of these times was somewhat balanced  by recognising that a positive view of the world at difficult times is characteristic of so many of our members.  This was evident at the Odyssey Complex on Saturday 21st September when we assisted the Children’s Liver Disease Foundation in running the biggest family 10 pinbowling event that they have yet staged. This was a day when we saw at close hand the dignity and courage of so many children and their parents.  It was evident at the members’ carvery lunch at the Seagoe Hotel on 17th November when 64 people met for the afternoon, some for the first time, and shared stories and experiences.  It is evident in dozens of informal contacts within our membership that complements the excellent work on patient care of the committee.  Two years into my time as chairman, I am beginning to see that the role’s emotional journey   is marked at every stage by troughs of sadness and peaks of inspiration – and that while the troughs are low, the peaks are very high.

You will have received a copy of the accounts for the year earlier in the meeting.  These accounts are now with an independent scrutineer, Mr. Alastair White, for review.

 During the year we received £19,325 from friends and supporters of the group – from personal donations, charitable givings from organisations, sales of items and one-off fundraising events.  As a committee, we remain in the fortunate position of not needing to plan our own fundraising projects.  This enables us to focus fully on the central goals of the group, most importantly patient care.  The willingness of so many to support us financially is something for which we remain very grateful.   

Since the AGM of 2013 we have spent £ 4,800 on patient care and £ 17,712 on hospital equipment. In August we purchased 4 CVSM monitors for Ward 6D.  In November we paid for insurance on the fibroscanner and in February we purchased 2 blood sampling stools and 2 blood sampling chairs for the Hepatitis C nurses.  These last resources were purchased following donations from the Joe Watson Foundation.  This Foundation in memory of Joe, a Hepatitis C patient who passed away in July 2013, has also, through the hard work his widow Carol, his sister Ann and other friends and family, provided the Hepatitis C nurses with pill boxes, scales and a laptop for public education.  It has been a pleasure to assist Carol and Ann with sourcing, purchasing and VAT exemption during the year and I wish the Joe Watson Foundation continued success.

Our website has recently been refreshed.  The technical work was done by Gareth Buchanan, who was monitored at every turn by Seamus Cunningham, the committee member who keeps the site updated.  I am grateful to Seamus for looking after the site and to my vice-chair Sharon Millen for looking after our Facebook page.  I hope that when you visit the site you will find it easily navigable and the content clear and interesting.  The site’s address is www.rvhliversupportgroup.org and the Facebook page can be found at www.facebook.co.uk/rvhliversupportgroup.  Please visit both; neither as yet has the level of traffic that I think they deserve. 

We had two excellent members’ meetings this year.  In October Dr. Cadden delivered a detailed and highly engaging account of the work done on the ward during the previous year and of the consultants’ plans for the future.  In February two clinical psychologists, Dr. Chris Tennyson and Dr. Melanie Wolfenden, answered a series of questions about the importance of mental attitudes in healing.  This meeting was notable for the way in which a number of the audience spoke candidly about their own psychological struggles and triumphs following transplants.  As ever, we are very fortunate that busy professional people are so willing to speak at members’ meetings and to ensure that, dare I say it, members of this group are at  least as well informed about current developments in their field of medical interest as members of support groups in other fields.

We continue to be involved in the work of the Northern Ireland Transplant Forum.  This is an umbrella group of charities with an interest in raising public awareness of organ donation. As the Liver Support Group’s representative on this Forum I have, over the past year, helped out at organ donation promotion stands in schools and universities, delivered presentations to school children in Harmony Hill Primary School and Bangor Academy and worked with North Down Council to facilitate the design and construction of a bench in memory of donor families.   As a charity we hosted a pitch at the Forum’s Gift of a Lifetime football tournament in September.  I was fortunate enough to be invited to a meeting with the First and Deputy First Ministers on 25th March.  At this meeting Mrs Jo-Anne Dobson MLA  presented the case for her Private Member’s Bill to introduce as soft opt-out system in Northern Ireland. It was a privilege to be able  present some of the arguments in favour of her bill but also to give our two most prominent politicians an idea of what the experience of waiting for and receiving a liver transplant is like for patients, their families and carers. 

While we work steadily within Northern Ireland only, it is hard not to be aware of the national context of our work.  I was made very aware of this national context when I attended, with some 30 other delegates, the British Liver Trust’s Support Group Conference in Birmingham in November.  As you will know, during the past couple of years liver disease has been in the news.  Sporadic reports are delivered with plenty of drama and wide-eyed concern – and then the whole issue goes away until the next time.  So, Dame Sally Davis, CMO for England, announces the rise in liver disease in the United Kingdom at a time when it was falling across Europe as a major concern in her report of November 2012. In March 2014 the national news again carries a major feature on the rise in liver disease in the United Kingdom at a time when it was falling across Europe.  Data from Northern Ireland seems to support these claims; in 2012 -13, there were 5, 1000 admissions to hospitals for liver-related illness, a rise of 21% on 2011-12, a year which had seen a 28% rise on figures for 2010-11.

And yet, at a time when GPs, hospital staff and transplant teams are battling to save and restore the lives of increasing numbers of people, those who control strategy and funding don’t seem to be battling with quite the same passion.  This would seem to be the case when we hear that interviews for all clinical directors’ posts in NHS England have a patient on the panel – apart from for the Liver/Gastroenterology post.  When we hear that all European countries have universal vaccination for Hepatitis B, apart from Greece and the UK.  When we hear that the British Government reneged, with hardly a word of complaint from anyone, on its pledge to introduce minimum pricing for alcohol.  And when we hear that if you have liver disease in Europe you invariably see a hepatologist – whereas in the U.K. you just might, because there aren’t enough of them in post.

We are a small charity operating solely within Northern Ireland and there is little that we can do to influence any of this.  It is, however, very disappointing that the recognition by health professionals of how serious current levels of liver disease are  and the tireless work of medical staff to cope with it do not seem to be matched by a commensurate commitment on the part of government and NHS management to tackle perhaps the most serious social health issue in these islands.

 In the light of all this, it is particularly pleasing that we will very soon be involved in a major campaign to raise public awareness of liver disease.  Over the next 6 weeks we will be assisting the British Liver Trust as they prepare to bring their Love Your Liver campaign to Northern Ireland for the first time.  The British Liver Trust has been running this campaign in Great Britain for several years and this year was its most successful ever.  In all, their team screened 806 people in 8 different venues, with queues in some places forming before 9 a.m. in the morning.  Of the 594 of these people who were fibroscanned, 124 were referred for further tests as a result of the scan showing some signs of liver damage.  Just as important, those who weren’t referred received the outcomes of their screening and information on changes that could improve their health and reduce the risk of liver disease.  As one of the trustees said, ‘Getting this early warning not only helps the individual but may save the NHS millions.’

The campaign will run from 9 a.m. until roughly 5 p.m. on Tuesday 20th May at Castlecourt Shopping Centre.  We are grateful for the full support of the consultants and look forward, after 16 years of  working steadily on care and healing, to being involved for the first time in a major project aimed at prevention.

 I will finish by thanking you for your support tonight and throughout the year.  I wish you a safe journey home and health and happiness until the next time we meet as a group. 

 

 

 

 

 

 

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Chairman’s report 2014 AGM2020-08-04T11:17:48+01:00

RVH welcomes new consultant

The RVH Liver Unit has recently been strengthened with the arrival of Dr. Roger McCorry.

Roger, a past pupil of Ballyclare High School, trained at Queen’s and during his 3rd year elective worked in the LITU at King’s alongside Professor Nigel Heaton.

Spells as a Junior House Officer in the Mater Hospital and as a Senior House Officer in various hospitals in Northern Ireland led to his taking up a gastroenterology training post in Manchester from 2007 – 12.  During this time he also undertook a year’s hepatology training, firstly in the Liver Unit at Nottingham and then in the transplant unit at Cambridge.

This led to spells as a locum consultant and gastroenterologist in the Royal Preston Hospital and as a consultant hepatologist in Wythenshawe.

Our new consultant

Our new consultant Dr Roger McCorry

The chance to return home and work in the RVH came ‘out of the blue’ and he had no hesitation in applying for it.  So far he has thoroughly enjoyed being back in Northern Ireland.  He is coping well with the pressures of work – and of fatherhood, following the arrival of Oliver in late February, a brother for 3 year old Richard.

Roger set up a nurse-led fibroscan service in Preston and would be keen to set up a similar service in Belfast.  Inspired by his experiences in King’s and Cambridge, he is particularly interested in how liver transplantation will develop in the years ahead and in the likely impact of stem cell research.  He will be speaking about these issues as our guest at the 2014 AGM.

We wish Roger every success and happiness in his new post.

 

 

 

 

RVH welcomes new consultant2020-08-04T11:17:48+01:00

Chairman meets FM/DFM

Meeting with First and Deputy First Ministers

On the invitation of Mrs. Jo-Anne Dobson, MLA, I attended a meeting at Stormont on Tuesday 25th March, at which the First and Deputy First Ministers heard arguments in favour of a change to the law on organ donation.

Mrs. Dobson is currently working on a draft of her Private Member’s Bill to change the law from an ‘opt-in’ system to a ‘soft opt-out system’.  Such a change reflects the views of 85% of the RVH Liver Support Group’s membership from the poll taken in December 2011.

I was fortunate to be given an opportunity of presenting some of the arguments – the fact that countries with some form of opt-out system have around 30 deceased donors per million of population while the UK has only 19; and the prospect of a more open culture for discussing organ donation ensuring that the wishes of the deceased are better known.  Others emphasised that donation must always be preceded by family consent and that a change in the law must go hand-in-hand with improved infrastructure and thorough public education.

l – r : Martin McGuiness (DFM), Jo-Anne Dobson (MLA), Peter Robinson (FM), Donald Cairnduff, Billy Thompson (Northern Ireland Kidney Research), Mark Dobson (kidney recipient).

l – r : Martin McGuiness (DFM), Jo-Anne Dobson (MLA), Peter Robinson (FM), Donald Cairnduff, Billy Thompson (Northern Ireland Kidney Research), Mark Dobson (kidney recipient).

I was also fortunate to be able to say a little about the work of the RVH Liver Support Group and about the experience of liver patients – whose mean waiting time for a transplant is 175 days; who have to travel to England for surgery; and who, when they get there, will be treated by transplant teams who are now having to use ‘extended criteria’ organs, since the need for organs outstrips their current availability.

It was a privilege on the day to be able to pass on something of the experience of liver transplant patients to our two most prominent politicians.

Donald Cairnduff

Chairman meets FM/DFM2020-08-04T11:17:48+01:00

Norman’s story

My liver problems really started thirty years ago although they did not show until this past ten years. When I was about twenty five I developed ulcerative colitis and had some treatment for it which went very well, what we did not known at the time was I should have been on treatment for it all along and went on to develop PSC.

Having been at the blood donors a Nurse said my blood was low in something and to get it checked, which naturally, being a man, I did not do.  The next time a different nurse told me the same story and this time I did get my blood checked to discover I had a substantial tumour on my liver.  After a great deal of discussion it was decided to have a look and see what shape the liver was in. Went for an operation and when I came to after I was to discover that the Doctors, Diamond and Taylor had removed sixty percent of the liver and had got all  of the tumour removed and that there was no need for treatment as it was a primary tumour and they got it away with “margins”.

What was left of the liver was unable to sustain my body’s needs.

We had to carry on with life and no word of a transplant having had cancer they would be reluctant to put me on the list while in remission from cancer.

After a few years the threat of the cancer returning had lessened and I was put on the transplant list where I was to remain for the next couple of years.

During this waiting period we were to receive the best care possible in the RVH liver unit where the Doctors and nurses have became firm friends.

When the call did come to head for Kings in London our transplant co-ordinator Ami had us flown out of Enniskillen to Biggin Hill and then by ambulance to Kings Hospital .

The first Liver that I was to receive was not suitable but the next morning Ami came and announced that another liver had presented.  All hell broke loose and eleven and a half hours later I had a new liver fitted after which I spent eight days in Intensive care and cuckoo land and six days later I was back in 6D in the RVH in Belfast

What surprised me most was that at no time was I ever sore or in pain.

I would like to give thanks to my donor and to let their family know their loved one lives on.

To all the Doctors, Nurses and medical people we would like to thank them for their medical knowledge and help, to Myrtle and our family especially Dr Olive for being there this past seven years.

We did not do this all on our own, some ONE was watching out for us.

 

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Norman’s story2020-08-04T11:17:48+01:00
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