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So far Arthur Goan has created 244 blog entries.

The Organ and Tissue Donation (Deemed Consent) Bill passed it’s final stage

Health Minister Robin Swann conveys news of the Bill passing today to the waiting media

RVH Liver Support Group Chairman, Jim Kilpatrick, congratulates Health Minister Robin Swann MLA and Jo-Anne Dobson following the passing of today’s Bill.  Jo-Anne had unsuccessfully endeavoured to bring the change about during her period as an MLA in 2014.

The Liver Support Group welcomes news that the Organ and Tissue Donation (Deemed Consent) Bill passed its final stage in the Assembly today 8th February 2022, with a unanimous vote, and many personal statements of thanks and relief that the Bill had passed without amendment.  Following Royal Assent the Bill will come into Law in 2023.  It brings Northern Ireland into line with the rest of the UK nations, where all eligible adult citizens are deemed to have consented to be potential organ donors, with an option to opt out if they choose.  At present potential donors must explicitly opt to sign the donor register to be considered.  Consent rates here are currently at 64%, and it is hoped to raise this following the Bill becoming law to around 80%.  A period of intense education, training and public awareness will begin to enable the public to discuss today’s change, and convey their wishes to their families, who will continue to be consulted in any situation where organ donation is being considered

The Organ and Tissue Donation (Deemed Consent) Bill passed it’s final stage2022-02-08T18:47:40+00:00

Are you a liver transplant recipient?

If you’re a liver transplant recipient, please consider taking part in this new study by NHS Blood and Transplant and Imperial College.

The study is looking into the antibody response to COVID-19 in people who are immunosuppressed and vaccinated.

To take part, you’ll need to be over 18 years old and have had (or about to have) your third COVID-19 vaccine. You’ll answer an online questionnaire and take a finger prick blood test at home.

You can find out more and register to take part here > https://britishlivertrust.org.uk/transplant-recipients…/

Are you a liver transplant recipient?2022-01-20T11:44:02+00:00

🎅Season’s Greetings to the patients and staff in Ward 6D from RVHLSG 🎅

Kay and Jim, from the Liver Support Group, seen here with Sister Carol Harper bringing warmth and joy to patients and staff in Ward 6D at the RVH. The contents of these beautiful hampers have been sourced by members of the committee and lovingly brought together and presented to the ward.

🎅Season’s Greetings to the patients and staff in Ward 6D from RVHLSG 🎅2021-12-21T15:19:07+00:00

The Melody Study; assessing antibody responses.

“The MELODY Study”
Some exciting news for liver patients about a new study starting today.
The MELODY Study aims to assess antibody responses following three Covid-19 vaccine doses in immunocompromised people. It will include people who have received solid organ transplants, people with rare autoimmune diseases receiving immunosuppression and people who had a diagnosis of blood cancer. It aims to recruit 12,000 solid organ transplant patients.
For more information, and to register, go to www.melodystudy.org
The Melody Study; assessing antibody responses.2021-12-08T16:46:50+00:00

Jennifer Cairnduff from the RVH Support Group receives a donation from Thomas Morrison (11)

A KIND-HEARTED West Belfast boy, who suffers from a debilitating liver condition, has donated £367.62 of his own pocket money to the RVH Liver Support Group.

11-year-old Thomas Morrison lives with portal hypertension and portal vein thrombosis, which restrict the blood supply to his liver and causes his spleen to enlarge.

The Holy Trinity Primary School pupil had diligently saved his pocket money, putting all of his pennies and pounds into collection tins, which he donated to the charity on Saturday.

Thomas’ condition means that he must go for regular checkups and appointments at the Royal Victoria Hospital, and often has to travel to England for treatment.

The generous Glen Road boy said of his donation: “The liver foundation helped me, so I thought I might as well help them.”

He added that he is “going to start saving again”, insisting he will give more money to charity.

Due to his enlarged spleen Thomas is restricted in the activities he can take part in, and is unable to play contact sports. But as well as being a conscientious saver, he is also an avid fan of Cliftonville Football Club. To top-off a memorable week, he had a personal visit from team talisman, Joe ‘The Goal’ Gormley.

Thomas’ mum, Annemarie McGreevy, said that despite her son’s condition, she has “never seen a happier child”.

“He just takes everything in his stride,” she said.

“Thomas, from he was no age, couldn’t have come out of a shop without putting something in the charity box. He was never a child for running into shops or buying sweets. He would always put his money into the tins.

“Thomas wanted to help with the Liver Support Group because of all they’ve done for us, which I thought was amazing for all the age of him.”

She said he was “delighted” with the total he raised for charity, adding that it “gives him such a confidence boost”.

“The Liver Support Group do so much for us, so it’s so important for us to give back – I couldn’t be prouder of him,” she enthused.

“He just always wants to help other people. He’s such a thoughtful wee man.”

Jennifer Cairnduff from the RVH Support Group receives a donation from Thomas Morrison (11)2021-12-08T16:40:19+00:00

Fermanagh Cake Sale & 5K Walk

Sarah and Lorraine Mavitty  and family raised an amazing £1500.00 for the RVH Liver Support Group through their recent 5K walk and cake sale all in memory of their late husband/father, Raymond.

Fermanagh Cake Sale & 5K Walk2021-11-12T11:57:43+00:00

Fermanagh Cake Sale

This weekend and next we are fortunate to have 2 fundraising events taking place in County Fermanagh.
🚶 If you would like to participate in the 5K walk tomorrow please meet at Castle Coole at 1.45pm ready to start at 2pm.
🍰 The cake sale is open to everyone next Friday at Enniskillen Town Hall so come along and grab some delicious goodies and donate to a great cause at the same time!
Fermanagh Cake Sale2021-10-23T14:44:37+01:00

*** 3rd Primary Jab Update from RVH Liver Unit ***

The Liver Unit understands the anxiety of patients and their families regarding the current vaccination programme and terminology being used.
The Chief Medical Officer of NI has adopted the JCVI advice which is very clear that the current vaccinations for transplant recipients and other severely immunosuppressed individuals are THIRD PRIMARY DOSES and not booster doses (regardless of what has been told to patients in letters or verbally up to this point).
The Liver Unit staff are simply passing on the chief medical officer/JCVI advice. The Liver Unit strongly recommend following the instructions in the letter they have issued to patients to book your third primary dose.
Please do NOT contact the Liver Unit to seek approval on an alternative pathway to vaccination as the staff will be unable to give alternative advice.
For the small number of patients who were initially told they were given a ‘booster’ dose in September, please be reassured the vaccine you have been administered is considered your third primary dose and you will not be disadvantaged when booster doses are rolled out in future. You do NOT need a fourth vaccination dose at this stage and should not seek to book a further vaccination with the letter received recently from the liver unit.
Please keep the letters you have recently been issued as these will likely be required to facilitate booster doses in approximately 6 months when details have been confirmed by JCVI/government.
*** 3rd Primary Jab Update from RVH Liver Unit ***2021-10-23T14:22:58+01:00
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