Organ Donation Week – Before and After – Day 2

Philip Cairnduff

In August 2004 Philip Cairnduff returned to Belfast from a Habitat for Humanity building project in Africa very sick and very jaundiced. 5 days later, after being transferred to Kings College Hospital in London, he suffered acute liver failure.  Doctors gave him eight hours to live unless a suitable organ became available for transplant.  Fortunately one did.  He received the transplant that saved his life less than a week after his 18th birthday.

Before his transplant Philip was a Sixth Form student at Belfast Inst who had successfully completed AS examinations and was looking forward to starting his A2 year.  Outside school he was heavily involved in the life and work of his church.  His sporting life amounted to little more than cross country runs at school on games afternoons.

After his transplant Philip became an Advanced Motorist, completed a French and Spanish degree at Coleraine University (he lived abroad in Belgium and Spain during his 3rd year), competed regularly in the British Transplant Games, represented Team GB at the World Games in Argentina in 2015 and became the first liver recipient to complete the Belfast Marathon in May 2016.  He ran the marathon in memory of his donor who would have been 60 this year had she lived.

He says: Our lives are shaped by the people we meet but among the most significant people in my life is a family I’ve never met.  Whoever they are and wherever they are, I live each day in gratitude to them and hope that they would be proud of all my achievements.

Please join the organ donor register, tell your family and friends and offer the gift of life to someone like Philip.

It is a gift that will be cherished.

 

Organ Donation Week – Before and After – Day 22020-08-04T11:17:46+01:00

Organ Donation Week – Before and After – Day 1

Norman Lyons of Fivemiletown was diagnosed with an auto-immune disease many years ago and suspected that it would come back to haunt him. Which it did. On 6th December 2006 he was told by liver consultants at the Mater Hospital that he had a malignant tumour. A fortnight later 60% of his liver was removed and the tumour came away cleanly. With the remaining 40% struggling to cope, liver failure set in but Norman was not considered for transplant assessment until it was clear that the cancer wasn’t returning. He eventually received a successful liver transplant a few months after his 40th wedding anniversary.

Before his transplant Norman was on the waiting list for three years, during which time his health slowly deteriorated. He tried to persuade himself that he was in reasonable health but photographs taken at the time and the fact that his wife Myrtle was putting on his plate what you would give 2 year old child told a very different story.

After his transplant, Norman sees his new life as a reprieve and he intends to value every second of it. He enjoys meeting and sharing experiences with other transplant recipients – we all speak the same language.  He is a very active grandfather to his five grandchildren, accompanying them on walks and participating in their games.  A long term member and past captain of Clogher Valley Golf Club, he and his golf partner recently won a doubles tournament at the club.  Recently working on a building project he laughed to think that he was loving every minute of it having been at death’s door not long before.  He has also become a local source of inspiration to people coping with adversity; the phrase Look at what Norman Lyons came through is heard regularly within his community.

He says: We are humbled that a complete stranger donated a liver so that someone could live as they passed away. There’s never a day goes by that I don’t talk to my donor. We do things together.

Please join the organ donor register, tell your family and friends you have done so and offer the gift of life to someone like Norman.

It is a gift that will be cherished.

Organ Donation Week – Before and After – Day 12021-05-12T16:27:11+01:00

The BEFORE and AFTER series

Organ Donation week runs from September 5th until September 11th.

In recognition of this the RVH Liver Support group will be posting Before and After stories on its website during the week.  Each day a new story will tell of a liver recipient’s life transformed by the generosity of strangers.  The stories will illustrate the gift of life gratefully received and put to very good use by those fortunate enough to receive it.

You may well be familiar with some of the stories.  Please read and reflect on them anyway and encourage your friends, family and colleagues to read them as well.  Let’s hope that the power of these stories will help add more names to the donor register.

You will find them posted each day in the Stories section of the site.

The BEFORE and AFTER series2019-03-14T21:30:56+00:00

British Transplant Games

Ted with his coach, big brother Charlie

Ted with his coach, big brother Charlie

This year’s games were held in Liverpool. They were the biggest yet, with some 750 competitors aged from 2 – 90 and around 1,200 supporters. As ever, liver recipients from Northern Ireland were well represented. Catherine Annesley, Philip Cairnduff, Seamus Cunningham, Wendy Howe, Rachel Chambers, and Sharon Millen competed in adult events while Drew Benson, Ted Carley and Lucia Quninney-Mee competed in children’s events.

Amongst many highlights of their performances were Wendy’s winning a silver media in the javelin, throwing with her left hand after she had injured her right playing volleyball; the fact that Lucia competed at all 10 months after her third transplant, never mind that she won 2 gold, 1 silver and 4 bronze medals in swimming races; and Ted’s participation in the obstacle course and the 25 metres run, just a year on from his transplant. At 3 years old, Ted was our youngest competitor.

Bck in Belfast - L to R Sharon Millen, Philip Cairnduff and Wendy Howe

Bck in Belfast – L to R Sharon Millen, Philip Cairnduff and Wendy Howe

On returning to Belfast Sharon and Wendy spoke powerfully to the media about the games as a celebration of life and an appeal from 2,000 voices for increased rates of organ donation. Roughly 15 people per year on the transplant list in Northern Ireland will miss the opportunity to compete in these games because of the chronic shortage of organs.

Traditionally, numbers on the register increase significantly in the months after the games in the areas where they are held. Let’s hope this trend continues on Merseyside in 2016. And that the inspiration of all those mentioned above will help to drive up numbers on the Organ Donor register here in Northern Ireland.

Drew

Drew

 

 

 

British Transplant Games2020-08-04T11:17:46+01:00

Millbrook Lodge Fundraising Evening

Millbrook Lodge Fundraising Evening

Eddie Madine joined friends and family for a belated 50th birthday party at Millbrook Lodge on Thursday 12th May.  All proceeds from the evening went to the RVH Liver Support Group.

Edward Madine presents the proceeds of his fundraiser to Kay Duffy, founder of the RVH Liver Support Group

Eddie Madine presents the proceeds of his fundraiser to Kay Duffy, founder of the RVH Liver Support Group

 

Early in the evening Donald Cairnduff, chair of the RVH Liver Support Group, had spoken about the work of the charity in patient care, supplying necessary resources for the treatment of liver patients in the RVH and the promotion of the Organ Donor register.

It was a lively and enjoyable event.  Guests enjoyed supper to an accompaniment of songs from a wide range of eras to suit a wide range of ages, provided by DJ Johnny Quinn.  There was a display of Irish dancing by dancers from the Fegan – Curran  School of Irish Dancing.  An auction was led by Mr. Ian Wilson of Wilson’s Auctions and the evening ended with dancing to the Michael English Band.

 

A sum of £5,005 was raised and handed over to the charity’s founder, Kay Duffy, on the afternoon of 10th June.  All connected with the RVH Liver Support Group are very grateful for the time and effort that Eddie and his friends have put in to raise this magnificent total.

Eddie is on the list for a liver transplant.  Let’s hope he doesn’t have to wait long before he gets the call that will restore him to full health.

Millbrook Lodge Fundraising Evening2020-08-04T11:17:46+01:00

Seagoe members’ carvery lunch

Our annual carvery lunch for members was held on Sunday 22 May in the Seagoe Hotel in Portadown and it was a resounding success with some 80 members present. We had a private room this year and were extremely well looked after by the hotel management and staff. It turned out to be a lengthy afternoon which indicated the number of very useful conversations that were taking place. Members were delighted to meet others with similar stories to tell and similar experiences were recounted. It was well after 5.30 when the afternoon drew to a close. These photos show some of the members enjoying their day out.

Philip Cairnduff, the first ever liver recipient to run the Belfast Marathon, presnts a cheque to Kay Duffy

Philip Cairnduff, the first ever liver recipient to run the Belfast Marathon, presents a cheque to Kay Duffy

Our chairman Donald Cairnduff talks with some of our members

Our chairman Donald Cairnduff talks with some of our members

 

A group of members pose for the cmera

A group of members pose for the camera with Kay Duffy

Eileen Hearst was circulating with the guests

Eileen Hearst was circulating with the guests

Joyce and Michael Britt present a donation from their 40th wedding anniversary gifts to Founder Kay Duffy

Joyce and Michael Britt present a donation from their 50th wedding anniversary gifts to Founder Kay Duffy

Seagoe members’ carvery lunch2020-08-04T11:17:46+01:00

Hanna Family Fundraiser

Almost a year after his wife Nuala passed on, Andrew Hanna ran a very successful coffee morning and ballot in her memory in the Church of Ireland Halls in Irvinestown on Saturday 7th May. The event raised the remarkable total of £4,245.25  for the work of the  RVH Liver Support Group.

The morning was notable for many things – the excellent catering, the steady stream of people coming and going from 11 a.m. until after 1 p.m. and, above all else, the calm and dignified way in which the family talked about their loss.

•The Hanna family: back l-r Jamie, Andrew and Gerald; front l-r Nicola, Kirsty and Sinead.

• The Hanna family: back l-r Jamie, Andrew and Gerald; front l-r Nicola, Kirsty and Sinead.

 

The ballot draw was at 1.15 p.m.  By this stage most of the winners had left, identified only by the names and addresses on their tickets.  These addresses spanned an area well beyond Irvinestown, with winners from, amongst other places,  Enniskillen, Tempo and Lisbellaw.  All of which is testimony to the respect in which the family is held and to the willingness of so many to support them.

 

 

 

•The wider Hanna family with RVH LSG chair, Donald Cairnduff

• The wider Hanna family with RVH LSG chair, Donald Cairnduff

 

It was a privilege for committee members Donald and Jennifer Cairnduff to be there and to talk about the work and objectives of the Group.  Our thanks and best wishes go to Andrew, to his wonderful family and to all who contributed to a memorable morning by their presence and their generosity.

Hanna Family Fundraiser2020-08-04T11:17:46+01:00

Caoimhe on song for RVH Liver Support Group

When Lucy Duffy was looking for young people to perform in Another Night on Broadway as part of the Kinross Winter Festival, 6 year Caoimhe Clough was the youngest of the 14 successful singers and dancers who auditioned.

The performance, product of several months of intensive rehearsals, was a huge success. Caoimhe had plenty of stage time on the night, performing solo parts in songs from Mary Poppins, Matilda, Annie and The Sound of Music.

All profits went to charity, with cast members nominating the charity of their choice.  As a grand-daughter of Chris and Mairead Gruhn from Belfast, Caoimhe chose the RVH Liver Support Group as her charity, in memory of her ‘Papa’s’ successful liver transplant in June 2015.

Thank-you Caoimhe – your thoughtfulness has given us £240 towards our work.  We wish you many happy and successful years ahead as you take to the stage.

Caoimhe with 'Papa' Chris Gruhn and Lucy Duffy (Director of Another Night on Broadway)

Caoimhe with ‘Papa’ Chris Gruhn and Lucy Duffy (Director of Another Night on Broadway)

Caoimhe on song for RVH Liver Support Group2020-08-04T11:17:46+01:00

Congratulations to Philip on his marathon run

PHILIP’S FIRST MARATHON

Competing in 5k road races at the British and World Transplant Games, participating in 5k park runs on Saturday mornings and even completing a half Marathon was one thing.  Running the full 26.2 miles of the Belfast City Marathon was quite another.  This, however, was the goal that Philip Cairnduff, a liver recipient in 2004, set himself at the turn of the year.  If he was to do it at all, it was appropriate to do it in the year he turned 30.  And even more appropriate in the year his donor would have turned 60 had she lived.

Philip at the start with his coach John Glover

Philip at the start with his coach John Glover

Honouring his donor and her family, whose generosity and courage had saved his life, was the main reason why he started the rigorous training programme that his coach at Lagan Valley Athletics Club, John Glover, devised for him in mid-January.  It was also the main reason for persevering with it through the cold and rain of the past winter.  Raising money for the RVH Liver Support Group was a secondary though not insignificant motivation.  His initial target was £500.

Here Philip takes up his own story: The lonely training evenings, sometimes for hours at a time felt very worthwhile up until 16 miles in.  A few miles later I learnt just what ‘hitting the wall’ really meant.  From then on it was a battle between an exhausted body and a stubborn mind.  All the way round I was grateful to strangers who were encouraging me but most of all grateful to the complete stranger who allowed me to turn up at the starting line in the first place.

He finished in 3 hours 31 minutes 36 seconds.  He is, as far as we know, the first Northern Ireland liver recipient to run the Belfast marathon.  He was mentioned in an editorial in the next day’s Newsletter as one of three competitors who were the ultimate ambassadors for an event that symbolises human endurance and will in the face of adversity. As for his fundraising target, thanks to the generosity of many who have been touched by his story, the total currently stands in excess of £2, 000.

But will he be running another marathon?  It’s far too early to say.

Philip with his proud backup team of dad Donald and mum Jennifer

Philip with his proud backup team of dad Donald and mum Jennifer

Philip crosses the finish line with his time displayed on the gantry

Philip crosses the finish line with his time displayed on the overhanging clock.

Congratulations to Philip on his marathon run2020-08-04T11:17:46+01:00

AGM 2016 Report

AGM 2016

Some 50 members and friends of the RVH Liver Support Group attended the AGM on the evening of 21st April.

The necessary formal business, including the voting in of several constitutional amendments, the approval of the financial statement for the year and the election of the new committee went ahead promptly and smoothly.

Donald Cairnduff’s Chairman’s Report dealt with some excellent work during the year, including the setting up of a Helpdesk in Outpatients that had led to over 700 contacts, a 48%  increase in patient care payments and some robust lobbying for organ donation with MLAs during a ‘platform event’ at Stormont in April 2015.  As ever, those who were bereaved during the year were much in the thoughts of all on the committee, while the efforts of all who raised funds for the Group were deeply appreciated.  (The full report appears in the ‘From the Chairman’ section of the website).

Chief Guest was Dr. Michael Heneghan, Consultant Hepatologist at King’s College Hospital and well known to some in the audience from joint clinics.  His presentation traced the history of liver transplantation at King’s from its earliest days to its current world class status. The potential for world class surgery to save lives, however, was hampered by the unacceptable fact that the UK’s donation rates lagged behind so many European countries.  It was important that the Group and other charities and health agencies throughout the UK continued their advocacy of organ donation.

His presentation was well received by his audience.  Everyone was wished a safe journey home and reminded that they would be welcome to meet again in just over a month, at the carvery lunch in the Seagoe Hotel on Sunday 22nd May.

L to R Dr Michael Heneghan (Consultant Hepatologist), Gordon Cave,Jennifer Cairnduff, Eileen Hearst, Sharon Millen, Kay Duffy, Rachel Quinney-Mee, Donald Cairnduff, Tom McCready and Dr Neil McDougall at the AGM

L to R Dr Michael Heneghan (Consultant Hepatologist), Gordon Cave,Jennifer Cairnduff, Eileen Hearst, Sharon Millen, Kay Duffy, Rachel Quinney-Mee, Donald Cairnduff, Tom McCready and Dr Neil McDougall at the AGM

AGM 2016 Report2020-08-04T11:17:46+01:00
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