A residential weekend held at The Share Centre in Lisnaskea on the weekend of 14th to 15th September 2019 and attended by 11 families and 3 committee members.

An afternoon of activity on and beside Upper Lough Erne on Saturday helped create a strong dynamic amongst the people attending, some of whom were meeting for the first time. This dynamic was crucial for the open and honest sharing of advice and experience that developed informally throughout the weekend and for a powerful formal discussion on Sunday morning in which parents spoke of different aspects of caring – the impact of a child’s illness on other siblings; transition from children’s to adults’ services; and the fact that liver disease is often linked with other debilitating conditions. The session was sensitively chaired by Rachel and there was a palpable sense of eased concerns and mutual reassurance when it ended. Visitors’ evaluation of the weekend was very positive.